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Story Circles as a Methodology: Exploring Illness Perceptions in Advanced Heart Failure

We will utilize Story Circles with persons living with advanced heart failure to explore their experiences, their illness perceptions, and how these perceptions might influence goals of care and decision making. There is a gap in our current understanding of how persons living with an advanced life-limiting illness such as heart failure perceive their illness and how this might influence decision-making. New knowledge regarding a person’s illness perceptions has important implications for future work including goals of care conversations and decision making for heart failure throughout the illness trajectory and especially at the end of life.
Lisa Kitko at lkitko@psu.edu or 814-863-2228
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18 year(s) or older
This study is NOT accepting healthy volunteers
N/A
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Inclusion Criteria:
18 years of age or greater
Diagnosis of heart failure
English speaking
Exclusion Criteria:
Unable to provide informed consent
Heart & Vascular
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Location
Altoona, PA
Hershey, PA
State College, PA