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Prion Disease Registry at Penn State Health

This research is being done to help us better understand prion disease. The goal of the study is to establish a registry of patients with rapidly progressive dementia, suspected prion disease, or confirmed prion disease. A disease registry is an extensive collection of data related to patients with a specific diagnosis that plays an important role in the surveillance of a disease. Prion disease has poor prognosis, yet there is currently no approved treatment. The collection of information from prion patients will help us gather information to help advance the study of this pathology and potentially help contribute to treatments and preventative methods in the future.
18 year(s) or older
This study is NOT accepting healthy volunteers
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Inclusion Criteria:
Aged 18 or older
Diagnosed with prion disease
Suspected prion disease
Rapidly progressive dementia
Exclusion Criteria:
Aged less than 18
Without diagnosis of or suspected prion disease, or without rapidly progressive dementia
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