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Observational Study for Pediatric Rheumatic Diseases: The CARRA Registry
The original Childhood Arthritis & Rheumatology Research Alliance (CARRA) Registry was first established in 2010 to advance alliance infrastructure,facilitate expanded clinical and translational pediatric research, and transform the culture of pediatric rheumatology toward universal participation in research.
Continuation of the CARRA Registry as described in the protocol attached to this IRB submission will support data collection on
patients with pediatric-onset rheumatic diseases. The CARRA Registry will form the basis for future CARRA studies. In particular, this observational registry will be used to answer pressing
questions about therapeutics used to treat pediatric rheumatic diseases, including examining safety questions.
The Duke Clinical Research Institute (DCRI) is serving as the CARRA Clinicaland Data Coordinating Center (CDCC) for this protocol.
Jessica Beiler at jbeiler@hmc.psu.edu
All
Younger than 18 years old
N/A
Arthritis & Rheumatic Diseases