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Digital assessment of speech and fine motor control in motor neuron disease
This study includes collection of digital speech and fine motor control assessment data at a single study visit. Features extracted from this data will be compared with standard clinical disease outcome measures and also the features derived from control participant data. We will use these comparisons to explore the use of these digital assessments in capturing the range of functional changes that occur in motor neuron disease.
This is a single-session study that measures speech and fine motor function using digital tablet-based assessments. Patients with motor neuron disease and age-matched healthy controls will be enrolled. Sessions take approximately one hour.
$20
Yes
Wint Nandar - at wnandar@pennstatehealth.psu.edu
Neurosurgery (HERSHEY)
All
18 year(s) or older
NCT06315673
STUDY00024562
Inclusion Criteria:
[Patient Group Only] Diagnosis of ALS, primary lateral sclerosis (PLS), or progressive muscular atrophy (PMA)[Patient Group Only] at least minimal speech or handwriting ability
[Control Group Only] Possess no neurological or orthopedic problems that affects their speech or handwriting AND age- and sex-matched to the existing patient cohort
18 years of age or older
Fluent in written and spoken English.
Exclusion Criteria:
Neurological or orthopedic problems (independent of their inclusionary diagnosis for the patient group) that affects their speech or handwritingPregnant or nursing woman
Prisoner or institutionalized individuals
Have any clinically relevant medical history of other disease or diseases that, in the opinion of the research team, exclude the subject from participation (including severe cognitive dysfunction).
Neurology
Survey(s)