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18 Study Matches

Raising a Child with T1D and Autism: Qualitative Thematic Analysis

We have utilized a previously completed forum and blog analysis conducted as STUDY00007977 to begin to identify to successes and challenges families raising a child with both T1D and autism experience. This study seeks to expand our knowledge through conducting interviews with families recruited both online and through the clinic. By using an Interview Guide created with our themes identified thus far, we will have a chance to expand on these themes through interviews, as well as hear from families that may not use the online community. We will recruit and interview families through the diabetes online community and through Penn State Hershey--6-8 of these families will have a child with optimal glycemic control and 6-8 of these families will have a child with suboptimal glycemic control. In addition to refining themes, this effort will help us assess the reliability, credibility, and validity of what was found via forum and blog analysis.
Jessica Wright at jwright3@pennstatehealth.psu.edu
All
18 year(s) or older
This study is NOT accepting healthy volunteers
N/A
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Inclusion Criteria:
Able to read, write and communicate effectively in English
Caregiver (parent, grandparent, adult sibling, guardian) to a child age 5-18 years with both T1D and Autism
Telephone and internet access
Willing to consent and complete study requirements
Exclusion Criteria:
Unable to read, write and communicate effectively in English
Not a caregiver (parent, grandparent, adult sibling, guardian) to a child age 5-18 years with both T1D and Autism
No access to phone or internet
Unwilling to consent or complete study requirements
Children's Health, Mental & Behavioral Health, Diabetes & Hormones
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Impact of Family Contexts on Men’s Behavior

This is an online questionnaire study that will examine relationships between experiences in the family while growing up and the behavior of heterosexual and sexual minority men.
Danielle DelPriore at dxd750@psu.edu
Male
18 year(s) or older
This study is also accepting healthy volunteers
N/A
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Inclusion Criteria:
Men
Ages 18 to 36
From the United States
English-speaking
Exclusion Criteria:
Younger than age 18
Older than age 36
Women
Outside of the United States
Men's Health, Mental & Behavioral Health
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Participation in Rural Settings to Engage in Communities (PARSEC): A program to increase community participation for adults with Autism Spectrum Disorder

This is a longitudinal study that will examine the effectiveness of a program to increase community participation for adults with autism living in rural communities in Pennsylvania.
All
18 year(s) or older
This study is NOT accepting healthy volunteers
N/A
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Inclusion Criteria:
Autism
Living in a rural community
English speaking
Able to self-report
High school graduate
Exclusion Criteria:
Inability to provide consent
Mental & Behavioral Health
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One Penn State : Connecting a Learning Community of Geographically Diverse Students

The community of remote learners is on the rise. With the trends of application and skill based knowledge, more and more people are migrating to the learn while you work paradigm. People value flexibility and comfort increasingly. Penn State is one of the few Universities propagating the cause of spreading knowledge via all modalities. The 33,302 students spread across its 19 commonwealth campuses are further a testimony to the prevalent trends. It is important that all these students receive an integrated and cohesive student experience. This also covers the need for the students to feel a sense of social belongingness. The work will focus on bringing together the Penn State community to achieve the true essence of it’s chant WeAre!
Sanjana Gautam at sqg5699@psu.edu
All
18 year(s) or older
This study is also accepting healthy volunteers
N/A
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Inclusion Criteria:
Must be 18 years of age or older
Must be a student of Penn State
Exclusion Criteria:
Most not be younger than 18 years of age
Education
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Does Environment Matter? Exploring the role of speech community heterogeneity in the generalization of perceptual learning

The primary object of the study is to understand how experience with different dialects of Spanish affects one's ability to adapt to a previously unheard dialect. Participants will complete a questionnaire, a picture naming task, and will listen to words make word/nonword decisions.
alexander mcallister at afm159@psu.edu or 518-524-3721
All
18 year(s) or older
This study is also accepting healthy volunteers
N/A
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Inclusion Criteria:
Spanish-English bilinguals who learned Spanish during early childhood and are also proficient in English.
Exclusion Criteria:
Individuals with more than intermediate proficiency in a third language will be excluded.
Individuals who began learning Spanish after early childhood will be excluded.
Participation will also be restricted to individuals over 18 years of age.
Language & Linguistics
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Study Locations

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Location
State College, PA

Dining with Diabetes in Pennsylvania

Penn State Extension's Dining with Diabetes program is an evidence-based community education program for people with or at risk for type 2 diabetes. The program teaches participants how to prevent or manage their disease by providing practical knowledge and strategies to make the necessary lifestyle changes that will lead to healthier living and reduction in the risk of complications. The overall goals and objectives of the program are as follows: Increasing knowledge of healthy food choices for families with or at risk for diabetes Promoting behavior changes by offering demonstrations and tasting of healthy food. Increasing knowledge of essential medical tests associated with diabetes management. Promoting physical activity as a component of diabetes control. Encouraging self-management and self-efficacy skill. Connecting participants to their healthcare providers for long-term follow-up. The program is designed to meet 4 consecutive weeks and then a 3 month follow-up. Participants A1c and blood pressure are taking at the first and follow-up classes. Classes consist of a nutrition lesson, physical activity, cooking demonstration and food tasting.
Debra Griffie at dab210@psu.edu or 610-489-4315
All
18 year(s) or older
This study is also accepting healthy volunteers
NCT04080960
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Inclusion Criteria:
Individulas with type 2 diabetes
individuals with pre-diabetes
individuals at risk of developing type 2 diabetes
healthy family members/caretakers
healthy volunteers
Exclusion Criteria:
under the age of 18
Diabetes & Hormones
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Study Locations

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Location
Altoona, PA
DuBois, PA
Erie, PA
Greater Pittsburgh Area, PA
Hazleton, PA
Reading, PA
State College, PA
Wilkes-Barre/Scranton Area, PA

Exploring Parental Influence in Youth Disability Sport Participation

We are conducting an online survey study for parents of children with disabilities that explores their perceptions of participation in disability sport within their communities.
Courtney Jasiulevicius at cmj5308@psu.edu or 813-846-4145
All
18 year(s) or older
This study is also accepting healthy volunteers
N/A
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Inclusion Criteria:
has a child with a physical disability or sensory disability
has a child that is enrolled in a disability or adapted sport program
has a child between the ages of 10 and 17
Exclusion Criteria:
does not have a child with a physical or sensory disability
does not have a child with a disability between the ages of 10 and 17
does not have a child that plays a disability or adapted sport
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Understanding Information Needs and Challenges faced by International Spouses during Adjustment

The study examines ways in which technology can be designed to provide support and services to international spouses during their adjustment to a new host environment. In particular, we would like to investigate the needs of spouse’s communities, the challenges faced by this population during adjustment, and propose design implications for developing systems and services to improve their access to social services and to promote community development and civic engagement.
Jomara Binda at jmb89@psu.edu
All
18 year(s) or older
This study is also accepting healthy volunteers
N/A
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Inclusion Criteria:
Individuals who understand English
Individuals who hold a dependent (F-2/J-2) visa status
Exclusion Criteria:
Non-English speakers
Age under 18
Non-dependents (F-2/J-2) visa status
Anyone who cannot consent to participate in this study
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Study Locations

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Location
State College, PA

Coparenting, Infant Sleep, and Infant Development: An Intervention Study

This application proposes a randomized clinical trial (RCT) to evaluate the effects of a sleep-enhanced adaptation of an evidence-based transition-to-parenting coparenting intervention program [Family Foundations - FF). The study has three arms. In one arm, families will experience FF as originally formulated; in the second, families will receive an adapted FF that emphasizes coparenting in infant sleep contexts; the third arm will serve as controls. Assessments of coparenting and parenting in infant sleep contexts, parental adjustment to infant sleep behavior, choices about sleep arrangements, infant and parent sleep quality, and infant socio-emotional functioning, will serve as outcomes.
Morgan Loeffler at FF@psu.edu or 717-695-7050
All
18 year(s) or older
This study is also accepting healthy volunteers
NCT03187561
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Inclusion Criteria:
Parents must live together
Parents must be expecting their first baby together
We must start working with the couple before the baby is born
Parents must be 18 years or older
Families who can speak and understand English
Exclusion Criteria:
Single-parent families
Families with more than one-child
Familes who cannot speak or understand English
Families in which one parent is under the age of 18
Pregnancy & Infertility, Sleep Management, Women's Health
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Study Locations

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Location
Carlisle, PA
Harrisburg, PA
Hershey, PA

Parental Stress and Coping Post-NICU Discharge: Perceptions of Daily Stress and Psychobiological Patterns of Response to Stress Challenge

Parental stress levels following discharge from the neonatal intensive unit (NICU) can have impacts on mental health and relationship functioning. The current practice and understanding of Family-centered NICU care often does not address interventions to facilitate parental means to cope with this stress, be it through religious/spiritual means or traditional forms of coping, both of which are tied to their babies’ functioning outside of the NICU. Thus, parental experiences of stress as assessed through self-perceptions and biological and behavioral indicators of stress and coping strategies is an important first-step in future development of a psychospiritual intervention, which is thus far lacking in family-centered NICU care.  
All
18 year(s) or older
This study is also accepting healthy volunteers
N/A
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Inclusion Criteria:
Parent of a former preterm infant hospitalized in NICU within the past 12 months with parental custody of the infant
Fluent in written and spoken English
Exclusion Criteria:
Chronic illness impacting cardiovascular or autonomic stress measurement (autoimmune disorders- e.g., Lupus, RA, Crohn’s disease)
Advanced cardiovascular disease (e.g., CHD, CHF, arrhythmia, pacemaker, history of MI)
Individuals with endocrine disorders impacting stress hormonal measures (e.g., Cushing’s Disease, Addison’s Disease, IDDM)
Mental illness (e.g., schizophrenia, psychosis, panic disorder)
Pregnant women
Mental & Behavioral Health
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Study Locations

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Location
Hershey, PA

Invisible Sojourners: Second Language Socialization Among International Spouses

This study will examine how international spouses improve their English ability and form connections with the local community. Participants will be interviewed to learn about their experiences. Social events that are found to be positive will be recorded so that the interactions in that space can be analyzed to determine how they help international spouses.
Jade Sandbulte at jfs5644@psu.edu
All
18 year(s) or older
This study is also accepting healthy volunteers
N/A
Show full eligibility criteria
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Inclusion Criteria:
Traveled to the U.S. with a spouse who was enrolled at Penn State
Understands spoken English
Exclusion Criteria:
Is not a student at Penn State OR was not a student when you first arrived
Education, Language & Linguistics
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Study Locations

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Location
State College, PA

Pennsylvania Adoptees Longitudinal Study (PALS)

This study will examine various factors within the home of children adopted from the child welfare system between the ages of 4 and 10 that may impact their development. At the current time, there are two planned home visits, each 1-year apart. The children and parents will not be required to travel for sessions as all visits will occur in the home. This research will help understand the factors that impact the development of children adopted from the child welfare system and how we may better serve these children and their families.
All
All
This study is also accepting healthy volunteers
N/A
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Inclusion Criteria:
Child age between 4 and 10
Child legally adopted by the caregiver
The same caregiver will participate in each of 2 in-home assessment sessions
Exclusion Criteria:
Child diagnosed with intellectual disability
A legally adoptive caregiver is a biological relative of the child
Children's Health, Mental & Behavioral Health
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Study Locations

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Location
Altoona, PA
Carlisle, PA
DuBois, PA
Erie, PA
Greater Philadelphia Area, PA
Greater Pittsburgh Area, PA
Harrisburg, PA
Hazleton, PA
Hershey, PA
Mont Alto, PA
Reading, PA
Schuylkill Haven, PA
Sharon, PA
State College, PA
Wilkes-Barre/Scranton Area, PA
Williamsport, PA
York, PA

Assessing the Feasibility of Implementing a Storytelling Intervention among African Americans with Hypertension: A Pilot Study

Personal narratives or storytelling is an approach that has been used to promote healthy behaviors among people with diabetes, breast cancer, and high blood pressure. There is a need for low-cost, culturally-tailored interventions that promote healthy behaviors and improve health outcomes in the African American community. The objective of this project is to develop a storytelling intervention for African Americans with high blood pressure. Participants will be filmed sharing their experiences living with high blood pressure, and the videos will be shared with other African Americans with high blood pressure. We are recruiting 6-8 African American adults with high blood pressure, age 18-80, that have been diagnosed with high blood pressure and are taking medications to manage high blood pressure.
Yendelela Cuffee at ycuffee@phs.psu.edu or 717-531-7178
All
18 year(s) or older
This study is NOT accepting healthy volunteers
N/A
Show full eligibility criteria
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Inclusion Criteria:
Diagnosis of hypertension
Prescribed anti-hypertensive medication
Age greater than or equal to 18 years
African American
Exclusion Criteria:
Pregnancy
Unable to speak or read English
Mental status precluding ability to provide informed consent
Heart & Vascular
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Study Locations

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Location
Harrisburg, PA
Hershey, PA

Diet and stress responses in low-income rural adults under the dynamics of food insecurity

The study is recruiting adults in rural Central Pennsylvania to understand how their food environment in fall and winter predicts diet, stress, mood, and health in everyday life. Participants will use a provided survey phone to answer the survey questions and will use a provided chest belt to measure heart rate for 5 mins every day in the morning during the study period. There will be up to 2 training session in State College, PA or a community center in Woodland, PA. Data collection will take place at participant's home. Study compensation and travel compensation will be provided.
Muzi Na at muzi.na@psu.edu or 814-865-2919
All
18 year(s) or older
This study is also accepting healthy volunteers
N/A
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Inclusion Criteria:
Adults between 20-50 years
In general good health
If female, prior to menopause
Household income <= 185% of the poverty level
Exclusion Criteria:
Has any physical, mental or emotional disabilities
Is pregnant
Non-English speaking
Food & Nutrition, Heart & Vascular, Mental & Behavioral Health
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Study Locations

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Location
DuBois, PA
State College, PA

Pilot Study to Assess Medication Adherence, Health Literacy, and Technological Literacy among African Americans and Latinos with Hypertension

This pilot study aims explore the health literacy and medication adherence found among African Americans and Latinos with hypertension receiving care at Hamilton Health Center in Harrisburg PA. We also aim to determine the feasibility of the iPad or smartphone as a tool for accessing health related information among African American and Latino patients with hypertension receiving care at clinics at Hamilton Health Center in Harrisburg PA. The expected outcomes of this project are to obtain a better understand of the literacy levels and adherence behaviors of African Americans and Latinos in Harrisburg, Pennsylvania. The findings from this study will provide valuable insights into the health management behaviors of this community and determine if there is a need to develop a mobile health application for the management of hypertension.
Yendelela Cuffee at ycuffee@phs.psu.edu or 717-531-2044
All
18 year(s) or older
This study is also accepting healthy volunteers
N/A
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Inclusion Criteria:
Diagnosed with high blood pressure
Prescribed medication for high blood pressure
African American/Black (Hispanic or Non-Hispanic) or White (Hispanic)
21 years and older
Able to speak and read English
Exclusion Criteria:
Unable to provide consent to participate in the study
Heart & Vascular, Diabetes & Hormones
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Study Locations

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Location
Hershey, PA

Preadolescent Stress and Health Study

This study will examine the effects of stress on physical and mental health during early adolescence. We are recruiting 11- and 12-year old boys and girls to participate in three yearly visits at the PennStateHealth Pediatric Clinical Research Center. At the visits, a youth and one of their parents or guardians will participate in interviews related to stress, coping, and everyday life. They will also complete some puzzles and cooperative activities both together and separately.Youths will also provide blood, urine, and saliva samples to measure stress hormones and other health indicators such as cholesterol and glucose levels. Participating families will receive compensation for completing surveys at the three timepoints.
Martha Wadsworth at mew27@psu.edu or 814-865-2878
All
Younger than 18 years old
This study is also accepting healthy volunteers
NCT03436706
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Inclusion Criteria:
Medical assistance or low-income
child age 11 or 12 years
able to commit to two year study
able to read and write English
Exclusion Criteria:
intellectual disability
cancer or congestive heart failure
Children's Health, Mental & Behavioral Health
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Study Locations

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Location
Hershey, PA

The Implementation and Evaluation of the Autism Spectrum Ambassador Program (ASAP)

We are evaluating the implementation and the effectiveness of a medical student staffed support program (ASAP) for children diagnosed with Autism Spectrum Disorder coming into Penn State Children's Hospital for a medical procedure. The ASAP program involves training and assigning a medical student as an Ambassador to help advocate for the special needs of a child with ASD. This study is designed to compare patient satisfaction of children and their families who are assigned an Ambassador to those who are not assigned an Ambassador to accompany them during the procedure. The secondary objectives are to measure overall medical student satisfaction with the program, medical student career interests before and after participation, and medical student comfort level interacting with children with ASD before and after participation.
Cheryl Tierney at ctierney@pennstatehealth.psu.edu or 717-531-8414
All
Younger than 18 years old
This study is NOT accepting healthy volunteers
NCT02842671
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Inclusion Criteria:
autism
surgery
Exclusion Criteria:
older than 18
healthy
Mental & Behavioral Health
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Study Locations

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Location
Hershey, PA

Brain Mechanisms of Overeating in Children

Reducing intake from large portions is of critical importance to preventing obesity. People consistently eat more when they are served larger portions, a phenomenon known as the portion size effect. The mechanisms of the portion size effect are not well understood, and investigating the underlying neurobiology that drives this phenomenon may inform the development of more effective obesity prevention programs. The proposed research will follow healthy weight children who vary by family risk for obesity to identify the neurobiological and appetitive traits that are implicated in overeating and weight gain during the critical pre-adolescent period. We expect results to confirm the hypothesis that reduced function of brain inhibitory pathways and increased activity in brain reward pathways in response to portion size cues contributes to excess intake with large portions and greater weight gain over time, particularly in children who have higher risk for obesity. The proposed studies will characterize the relationship between brain response to portion size and eating behavior and will allow us to determine whether brain and behavioral responses predict body fat gain during pre-adolescence. These studies will contribute essential information to our understanding of the pathways implicated in overeating and obesity and will facilitate the characterization of “at risk” phenotypes that can be targeted by prevention programs.
Marissa Reynolds at mlr5246@psu.edu or 814-865-5169
All
Younger than 18 years old
This study is also accepting healthy volunteers
NCT03341247
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Inclusion Criteria:
The child must be age 7-8 when the first study visit is completed
The child must not have any food allergies to foods used in the study, learning disabilities, psychological diagnoses, red/green color blindness, or claustrophobia.
The child must not be taking any medications known to influence cognitive function, taste, appetite or blood flow
The child's BMI must be below the 90th percentile at the first visit
The biological mother and father must have a BMI between 18.5-25 kg/m2 (low-risk group) or greater than or equal to 30 kg/m2 for mothers and greater than or equal to 25 kg/m2 for fathers (high-risk group) and 1 parent must attend all visits.
Exclusion Criteria:
Children will be excluded if they are not within the age requirements (< than 7 years old or > than 8 years-old at the first visit).
Children will be excluded if they have any food allergies, learning disabilities, psychological diagnoses, red/green color blindness, or claustrophobia
Children will be excluded if they are taking cold or allergy medication, or other medications known to influence cognitive function, taste, appetite, or blood flow
Children will be excluded if their BMI is above the 90th percentile at the first visit
Families will be excluded if the biological mother or father do not fit the BMI requirements
Food & Nutrition, Prevention, Neurology
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Study Locations

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Location
State College, PA